Friday, February 22, 2013

40 shades of grey

And no, this has nothing to do with the book out there…believe me I only wish it was that simple.

I got my MRI results yesterday from the MRI on Wednesday.

The gist of it is: there has been change to the surgery bed, BUT more than likely it is healing.  My neuro oncologist told Dr. H he wants to go to 4 week MRIs verses 6 weeks…just to keep a closer eye on it all…which is fine with me.

I talked to Dr. H’s nurse when she gave me the report but now I have more questions AND I lost the report  so I need to have her email it to me.

I go see the radiation dr on Tuesday, so I am guessing we will have more info then. Yes, Eric is going with me so he will remember the conversation!

I can really see how Ian wants a black or white answer from me when he asks me something – this living in the grey zone is hard.  I am trying to get used to it and know there is no black or white answer.

Please pray:

my whole body is cancer free – today, tomorrow & always

feeling returns to my right leg

Sunday, February 17, 2013

On our own

Eric’s parents left Saturday morning – this is the first time we are “on our own” since October 22nd – that is when mom came back because I was convinced something wasn’t right.

Mom was here through the end of January they got here a day after she left. They were willing and able to stay longer, but about 12 days ago – things started changing again...huge changes – miracles happening right before our eyes.

My energy wasn’t just creeping back, but it seemed to come back in a huge burst AND it has stayed.  I even had zometa on Monday and it didn’t knock me down.

I started taking and picking up Ian by myself, I went over to Gina’s for lunch, I met Syl at the park one day and Jungle Java another day, I drove on 35 a few times – things are truly falling into place.

So, his parents witnessed all these magnificent things taking place and asked if we were ready to be on our own.  We talked about it, and we were – so now we are.

I still don’t think I can cook at the end of the day because I start getting tired around 4:30, but we are planning on eating My Fit Foods for dinner or just salad.  Gina and Syl have told me they will double up what they are making for dinner a few nights and bring us food.

We got someone to clean the house again.  I have (or still trying to) coming to peace with the idea that after school me and Ian will just hang out, and if that means we watch TV or I let him play DS – that is what it means.  I try to make myself feel better with it by making Ian at least play a few educational games in the mix.

So here we go – we are on own…I am excited and scared all at the same time.

Please pray this week for:

God to continue to give me the energy

Clean MRI on Wednesday

Getting back to pre-tumor life being as easy as possible

Be cancer free today, tomorrow and always

I know all these amazing things happening is God working and it is so awesome to see and be a part of it.
On ward and upward!!

Tuesday, February 12, 2013

Explanation:

I have been thinking about this for a long time.  I have a lot to say, but it is hard to find the words – even to write the words.

I finally feel like I am in a place to talk about things – to explain myself – to all those I have shut out this entire time...maybe??

I just couldn’t talk about it before.  I still can’t talk about it in person – I don’t really know why.  It is still so fresh…I am still so scared…so many untouched emotions.

I watched a Criminal Minds last night that was recorded from a while ago. I don’t usually watch this show because it is a little too much for me, but it was a follow up to one that was dealing with one of the main characters losing a loved one.  This episode showed him blocking out his friends and family and it really hit home with me. I completely understood it – he knew they were there for him, but he just couldn’t deal with the emotions talking about it would bring.

I know no one has asked for an explanation – but I need you to know…

Me shutting everyone out wasn’t what I wanted to do – it was all I knew to do...it was all I could do.

I couldn’t talk about what I had been through…what we were still going through – it was too much for me to wrap my head around.

But then on the other hand I couldn’t go on with “normal” life because my world, my life, my everything had been more than flipped upside down.  I didn’t know if I was going to survive it all, I didn’t know if Ian was going to have a mom to help raise him, I didn’t know if Eric was going to have a wife – I didn’t know anything.

I didn’t want pitty but at the same time I wanted people to realize how bad it sucked.  Yes, I realize people can’t know how bad, how hard it was because I didn’t tell them…I am still working on that. There was a lot that went unsaid. 
I had no energy to do anything other than survive. I had no energy to talk to people, to write here or write back to people, to be alive - all I could focus on was making it through to the next day - heck, even through to the next minute. Surviving took it all - every ounce of anything I had.

I still don’t know what I need from others.  I try to think about what I would do for others if the situation was reversed and I realize I don’t know what I would do. I would want to ask them what they need and so many asked/still ask what we need – I still don’t know what to say.
I guess I need love and understanding.  I know I have both of these from so many people and I know it is hard to continue to give love without getting any in return from me...but that is what I need now.

What I want to say whe asked this: I need new cells…cells that don’t want to divide on their own and cause cancer. I need new DNA (I really don’t know if this is DNA stuff), what I need is stuff no one can give me.  So do I tell people this when they ask? I don’t – it doesn’t do anyone any good for me to be a smartass all the time…some of the time yes!

I still haven’t really explained anything here – I realize that. I guess I still don’t know how to explain it – I am not sure I will ever know how to explain what I went through and continue to go through every day.

But please know your love and support does not go unnoticed and it does make things so much easier – if I don’t tell you that enough, it is true.