Wednesday, November 22, 2017

New Art

I know I don’t post my art here near enough and truth be told, it is because it is hard for me to write about myself in a “look what I did” way. BUT I know if I am going to become the known artist and speaker I envision, I am going to have to learn how to do this with Grace and ease.

We (my husband) got most of my art us on the walls of my newish studio!! And I couldn’t be more in love with the feeling I get walking in there!

Honestly-I feel LOVE oozing from the walls!

Here - have a look 

So yes, this is the side of me you don’t see much of BUT with me feeling better and not having much happen in Cancerland I want you get to know me on a different level!

Hope you enjoy.

Tuesday, November 14, 2017

1st Birthday Party

My first birthday party was a huge unicorn filled room full of love and magic.

I have come to believe that I am a true unicorn in Cancerland. 

Tuesday, October 31, 2017

Emotional basket case

I had planned this week to be full of sparkling rays of glittery sunshine - you know - for my new birthday and all.

So far - not so good.

I am an emotional mess strung out on steroids. 

I haven’t been able to get my steroid level right to keep the post bone marrow transplant HVG (host vs graft). So I am exhausted again, having major stomach issues and honestly pissed. 

As with all my crap, I expect to be able to bounce back and don’t think my healing should take as long as it does.


Now I am just praying to feel good on Saturday for my birthday party!

Thursday, October 19, 2017

Bone marrow biopsy

Yesterday we drove to Dallas to get my 3 month bone marrow biopsy. 

Here are a few pictures of what happens in there.

Yes that is the needle that was stuck into my hip to take out bone.

Luckily, I am able to get the “feel-good IV” and according to Eric he needs to record me while I am getting a biopsy because apparently I say some funny stuff while laying there being stuck with a 6 inch needle.

But all in all, Tuesday was super easy. Drive was easy, appointment was easy and drive home! 

Yesterday I was in bed all day because sitting up hurt. But I am happy to say all is well today.

Sunday, October 15, 2017

A week in Cancerland

This past week was a fun-filled week of on and off migrations. <insert sarcasm>

I can’t seem to pinpoint a reason to why I get the migraines now. Before my bone marrow transplant, it seemed I would get migraines if I didn’t get Avastian right at 3 week intervals.

Now, for some reason, I don’t have to get Avastian to keep the migraines at bay. This is all so odd.

But it makes living here in Cancerland, harder just not knowing what is around the next corner.

On to some good news, I go to Dallas on Tuesday for my post 1 year bone marrow biopsy! It has been a year on October year. This has been one of the craziest years of Cancerland.

I am planning a 1st Birthday party for myself and I can’t wait!! Yes there will be pictures.

Monday, October 2, 2017

Always a sigh of relief

I never have any reason to suspect that the cancer could be back but of course it is lingering in the back of my mind especially when I have scans.

I had CT and Bone scans on Friday. I didn't expect to hear back from them on Friday but by midmorning today I was starting to get a little antsy that I had not heard anything. 

So I broke down and called even though I try to hold out and be patient but - oh well.
GREAT news - still NED (no evidence of disease). 

That makes almost 6 years of NED in my body and 4.5 years of NED in my brain!! None of this counts the whole MDS debacle.

Thank you all for the years of support and encouragement you give me… You never will know how much it means