It was a hard day.
I admit it – I don’t do well with change….AT ALL! I like to know what is going to happen, where I am going, what it looks like, etc. Yes, Ian is just like me in regards to this and I felt a little like a lost 4 year old Friday when we walked into the office in Round Rock. My Dr. moved offices to a new location and today was the first day there….I am still not sure about it all – as with most new things.
It is a lot smaller but it is oddly too small – I know, weird. The infusion room is a lot louder due to the smaller size and it doesn’t seem things here are as streamlined as they were at the old office. Eric keeps telling me that this is just as new to them as it is to me – which is true. They had to hire a whole slew of people to come over to this office since they just made it bigger.
That was just the start of the hard day. With my new infusion of BSI (trial drug) it adds another hour onto the infusion. So now a normal Friday infusion will be at least 3.5 hours and when I have to get Zometa (bone stuff) it will be around 4.5 – 5 hrs. We checked in at 8:15 to see my Dr. and didn’t leave until 2:00 and it wasn’t even a Zometa day.
The whole time I was sitting in the infusion chair all I could think about was how in the world are we going to make this work with Ian’s school? His school will be from 9:30 – 2:30 – there is no way I can drop him off and pick him up on Fridays. Yes Eric can do one/both of them, but how long is his work going to be cool with him practically not coming in on Fridays? How long can he run around ragged like this? Yes these are the things that run loops through my head on a daily basis. I am not worried about me – I am worried about Eric and Ian.
I live with stage IV metastatic breast cancer that has caused 3 brain surgeries and leukemia that required a bone marrow transplant. . I like to write about life - and I don't hold back! My mission is to always remind myself and others anything is possible,
2 comments:
I know that both you and Eric need him to be with you, but if he really needs to make an appearance at work, can we, your friends, do a shift with you?
Renee,
I think we met at least once at a PRC lunch. I know you don't know me, but I would love to help in anyway possible. I could help with drop offs since Fridays are the one day a week we don't have any plans. My daughter is 3, so we could do playdates and you could go rest in my guestroom. I have been following your blog for a few months now, and it is very moving. It helps me realize how lucky and blessed I am.
Please let me know if I can help- I can also help with household chores if you need me. The only thing I can't do is cook vegan- I am a meat and potatoes kind of girl.
Take care and know that there are people out there praying for you.
Theresa Galella
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