Saturday, November 24, 2012

Prayers needed…

It has been a while since I have written.

The long and short of it all – I had steroid psychosis after radiation because the radiated spot was still swelling, they thought steroids would bring the swelling down – it didn’t and the steroids pretty much made me crazy.  I couldn’t get out of bed, I was having panic attacks, I couldn’t eat, I cried all the time – I was a mess….a real mess.

Dr. H checked me into the hospital last Thursday to get me off the steroids. There we found my adrenal gland was super low and am now on medication to help that too.

I got out of the hospital on Saturday and was starting to feel more like myself – able to function at least.

I had to BSI Monday, an appointment with the neurosurgeon on Tuesday and BSI on Wednesday.

From the MRI I had in the hospital, it is showing there is still a “mass” in the same spot that is changing.  The neurosurgeon thinks it is another tumor, the radiation oncologist thinks it is necrosis from radiation (pretty much a big mass of dead cells that aren’t going away) and Dr H. just wants it out to figure out what it is.

 So with that, I am going back into surgery on Monday to have the mass removed. This has been a really good week though.  I feel normal in the head again (not crazy....able to function again), my sister and her family came down for Thanksgiving dinner that my friends ordered in for us, and mom is still here to help which has been a true God send.

I have felt all along that something wasn’t right – I wasn’t healing the way I was supposed to – something.

I can say I was losing faith that it was going to be okay, but somehow I am peace with the surgery and feel that no matter what it is in there, once it is out all will be well again.

I am having the same symptoms as before so I know there is something in there – numb feet, slight headache and blurry vision on and off – which could be from necrosis – it is just from something being in there.

Now there is a slight chance the MRI on Monday before surgery will show the whole thing gone and there won’t be surgery.

I need prayers – good energy – everything y’all got.

Please pray:

The MRI is a clear cut answer – I don’t want to have to make a decision on Monday.  I am praying for it to either be completely gone or not. I know that is weird, but I don't want it gone 50% then have to decide what to do.

If surgery happens, it is easy, successful and recovery is quick.

That God’s hands guide all of this and has complete control of it all. 

Thursday, November 1, 2012

I wish I knew...


I wish I could say sorry for not posting in such a long time – I can’t though.

I haven’t had it in me to write anything positive or write anything at all.

I wish I would have known what a complete toll this stupid brain surgery and radiation would have had on me.

I wish I would have known many things:

How much more I should have appreciated feeling good when I did

How hard it is to feel bad

How it is all too easy to shut out the world but in reality, that is the only thing I can do right at this moment.  For those who are concerned with it, don’t be – don’t take it personal – I am doing what I need to do for me and for my boys – that is all I can do right at this point.

I had to get another MRI on Monday because I was feeling like such crap over the weekend. The good news is there are no new areas of concern.  The bad news is there is still a ton of swelling that was making me feel like crap. They upped my steroids, gave me new meds for the queasiness and I am praying for it all to start working….and soon.

I don’t know how to reset from here. Some days are good, others aren’t.

I feel like when I am ready to hit the reset button and say this is it, this will be where my new normal starts – something happens and I start feeling worse again. 

Maybe I need to write daily – give it a scale so I can see it daily?  Then when I look back, I can see – oh, I had x out of y days good – better than last week…that is what I will do.

So far, todays scale would be a 6.

Please pray the swelling goes down quick and it stays down this time.

Please pray for strength, grace and hope…all of which I need so much right now.