I wish I could say sorry for not posting in such a long time – I can’t though.
I haven’t had it in me to write anything positive or write anything at all.
I wish I would have known what a complete toll this stupid brain surgery and radiation would have had on me.
I wish I would have known many things:
How much more I should have appreciated feeling good when I did
How hard it is to feel bad
How it is all too easy to shut out the world but in reality, that is the only thing I can do right at this moment. For those who are concerned with it, don’t be – don’t take it personal – I am doing what I need to do for me and for my boys – that is all I can do right at this point.
I had to get another MRI on Monday because I was feeling like such crap over the weekend. The good news is there are no new areas of concern. The bad news is there is still a ton of swelling that was making me feel like crap. They upped my steroids, gave me new meds for the queasiness and I am praying for it all to start working….and soon.
I don’t know how to reset from here. Some days are good, others aren’t.
I feel like when I am ready to hit the reset button and say this is it, this will be where my new normal starts – something happens and I start feeling worse again.
Maybe I need to write daily – give it a scale so I can see it daily? Then when I look back, I can see – oh, I had x out of y days good – better than last week…that is what I will do.
So far, todays scale would be a 6.
Please pray the swelling goes down quick and it stays down this time.
Please pray for strength, grace and hope…all of which I need so much right now.