Thursday, November 1, 2012

I wish I knew...


I wish I could say sorry for not posting in such a long time – I can’t though.

I haven’t had it in me to write anything positive or write anything at all.

I wish I would have known what a complete toll this stupid brain surgery and radiation would have had on me.

I wish I would have known many things:

How much more I should have appreciated feeling good when I did

How hard it is to feel bad

How it is all too easy to shut out the world but in reality, that is the only thing I can do right at this moment.  For those who are concerned with it, don’t be – don’t take it personal – I am doing what I need to do for me and for my boys – that is all I can do right at this point.

I had to get another MRI on Monday because I was feeling like such crap over the weekend. The good news is there are no new areas of concern.  The bad news is there is still a ton of swelling that was making me feel like crap. They upped my steroids, gave me new meds for the queasiness and I am praying for it all to start working….and soon.

I don’t know how to reset from here. Some days are good, others aren’t.

I feel like when I am ready to hit the reset button and say this is it, this will be where my new normal starts – something happens and I start feeling worse again. 

Maybe I need to write daily – give it a scale so I can see it daily?  Then when I look back, I can see – oh, I had x out of y days good – better than last week…that is what I will do.

So far, todays scale would be a 6.

Please pray the swelling goes down quick and it stays down this time.

Please pray for strength, grace and hope…all of which I need so much right now.
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