Monday, June 20, 2016

Here I go again...

I am sitting here watching trashy TV trying to take my mind off what is happening…yes, I am that girl who watches ALL the horrible shows that most people wonder who in the hell actually watches…I slyly raise my hand.

I have really shut my mind off to this new pre-leukemia diagnosis.  I knew all the feelings would come today…they always have in the past…they hide anywhere until the day of then they are all in my face.

I will start 5 straight days of infusion of Dacogen.  From what I understand, this will strip my blood of all the white cells for the first few rounds, then it will start helping my white blood cells complete the growing process (which is not happening now because they stop maturing way to early). Think a 2 year old thinking he is old enough to drive and in reality he can’t even reach the peddles.  

I can’t be on breast cancer chemo at the same time, so we are crossing every finger and toe possible that since I have been no evidence of disease (NED) for almost 4 years in my body it stays that way…that the BSI from years ago really taught my body how to kill off cancer cells. Only time will tell.

I am a nervous wreck…literally I feel like I could puke or pass out...I need a Xanax or many.


I keep telling myself something, anything good has to come out of this craziness.  I mean COME ON…the crazy stuff that is in my medical file thus far already makes doctors from all around say wow. 

I am asking for prayers to calm my mind, to not get sick from new meds, and peace for me and my guys. 

Monday, June 13, 2016

A sweet video

My heart is full of love. I wasn't able to go to my 20th high school reunion in but the fact that they did this for me literately fills my heart with love!

https://www.facebook.com/jroperking/posts/10154280070725127

I know a lot of people hated high school, but I loved it. I loved the craziness of it the friendships, growing up together, I loved it all...well not ALL but I had a ton of fun and great friends.

Saturday, June 11, 2016

20th High school reunion

I try not to be pissed at the circumstances of this life, and MOST of the time I am good...okay pretty good...okay sometimes I am not so good.

However I am pissed about this weekend...VERY pissed about this weekend.

It is my 20th high school reunion. A reunion I would love to be at. Hug all my friends, hear stories of everyone's lives who I don't keep actively in touch with, laugh about old stories and so much more I know will be going on.

I know I will get the rundown of it all from FB and hear stories from my friends who are going, but it is not the same and I am pissed.

Sunday, June 5, 2016

Pure Joy

We just returned home from our first family vacation in many years...years we so wanted a vacation from all the cancer bullshit that surrounds us on a daily basis...vacations that had been planned and paid for (thank goodness for insurance) which only had to be canceled a week before because something with me was going on.

This Vacation was close too being that way too. Two weeks ago I was having terrible migraines and needing 12-14 hours of sleep.

While I was awake, I made it a point to pray and holds space for a great fun filled vacation free of pain, panic and exhaustion.

I did the simplest thing ever...rented a scooter or mobility device (which turned out to the BEST thing ever.) I thought my pride wouldn't let me be happy on it...WRONG! I loved every second of being with my family...LOVED IT. 

A few pictures from Universal Studios Orlando and Islands of Adventure:

Me getting used to my new ride...which was pretty fun!
A beautiful FULL double rainbow on our first night there...God was watching over us
Our resort bus
Butter beer...tasty stuff
My little wizard 


We had such a great time and I am amazed that I am up and feel great.,,I feel like good things are coming our way!